14. References
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Armstrong, MP, G Rusthon, and DL Zimmerman, 1999, Geographically Masking Health Data to Preserve Confidentiality. Statistics in Medicine, 18, 497-525.
Bambauer, Jane R., Tragedy of the Data Commons (March 18, 2011). Harvard Journal of Law and Technology, Vol. 25, 2011. Available at SSRN: or
Benitez K1, Malin B., Evaluating re-identification risks with respect to the HIPAA privacy rule. J Am Med Inform Assoc. 2010 Mar-Apr;17(2):169-77. doi: 10.1136/jamia.2009.000026.
CHHS Open Data Handbook - CHHS, Information Strategic Plan 2016.
Colorado Department of Public Health and Environment. “Guidelines for Working with Small Numbers.” Retrieved from
Committee for the Protection of Human Subjects (CPHS), CPHS Bulletin & Update, January, 2005.
Federal Committee on Statistical Methodology, Interagency Confidentiality and Data Access Group. “Checklist on Disclosure Potential of Proposed Data Releases.” Washington: Statistical Policy Office, Office of Management and Budget, July 1999.
Federal Committee on Statistical Methodology, “Statistical Policy Working Paper 22 – Report on Statistical Disclosure Limitation Methodology.” Washington: Statistical Policy Office, Office of Management and Budget, 1994.
Golle, Philippe. “Revisiting the uniqueness of simple demographics in the US population. In Proceedings of the 5th ACM Workshop on Privacy in the Electronic Society. ACM Press, New York, NY. 2006: 77-80.
Howe, H. L., A. J. Lake, and T. Shen. "Method to Assess Identifiability in Electronic Data Files." American Journal of Epidemiology 165.5 (2006): 597-601. Print.
NAHDO-CDC Cooperative Agreement Project CDC Assessment Initiative. “Statistical Approaches for Small Numbers: Addressing Reliability and Disclosure Risk.” December 2004. Retrieved from *7jctjEJXwGDDMepE4_/ Statapproachesforsmallnumbers.pdf
NCHS Staff Manual on Confidentiality. Hyattsville, MD: National Center for Health Statistics, Department of Health and Human Services, “NCHS Staff Manual on Confidentiality.” 2004. Retrieved from .
NORC, “Case Study: The Disclosure Risk Implications of Small Cells Combined with Multiple Tables or External Data,” January 8, 2016.
NORC, “NORC Recommendations for California Department of Health Care Services (DHCS) Data De-Identification Guidelines (DDG),” January 8, 2016.
North American Association of Central Cancer Registries (NAACCR), “Using Geographic Information Systems Technology in the Collection, Analysis, and Presentation of Cancer Registry Data: A Handbook of Basic Practices,” October 2002.
Office of Civil Rights, U.S. Department of Health & Human Services. "Guidance Regarding Methods for De-identification of Protected Health Information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule." November 26, 2012. Retrieved from .
Ohio Department of Public Health. “Data Methodology for Public Health Practice.” .
Panel on Disclosure Review Boards of Federal Agencies: Characteristics, Defining Qualities and Generalizability, 2000, Proceedings of the Joint Statistical Meetings, Indianapolis, Indiana.
Stoto, MA. Statistical Issues in Interactive Web-based Public Health Data Dissemination Systems. RAND Health. September 19, 2002.
Sweeney, L. “Information Explosion, Confidentiality, Disclosure, and Data Access: Theory and Practical Applications for Statistical Agencies,” L Zayatz, P Doyle, J Theeuwes and J Lane (eds), Urban Institute, Washington, DC, 2001.
Sweeney, L. “K-anonymity: a model for protecting privacy.” International Journal of Uncertainty, Fuzziness, and Knowledge-Based Systems. 2002; 10(5): 557-570.
Sweeney, L. Testimony before that National Center for Vital and Health Statistics Workgroup for Secondary Uses of Health information. August 23, 2007.
The Centers for Medicare and Medicaid Services, Office of Information Products and Data Analytics. “Medicare Fee-For Service Provider Utilization & Payment Data Physician and Other Supplier Public Use File: A Methodological Overview.” April 7, 2014.
Privacy Technical Assistance Center, U.S. Department of Education. “Data De- identification: An Overview of Basic Terms.” May 2013. Retrieved from
State of California, Department of Finance, Report P-1 (Race): State and County Population Projections by Race/Ethnicity, 2010-2060. Sacramento, California, January 2013. Retrieved from
State of California, Department of Health Care Services, Trend in Medi-Cal Program Enrollment by Managed Care Status - for Fiscal Year 2004-2012, 2004-07 - 2012-07, Report Date: July 2013. Retrieved from
Washington State Department of Health. "Guidelines for Working with Small Numbers." N.p., 15 October 2012. Retrieved from .