10. Development Process

The CHHS Data Subcommittee requested the convening of the CHHS Data De- Identification Workgroup to develop the DDG.

The DDG Workgroup began with an orientation to the topic of data de-identification and presentations by the DHCS, OSHPD and California Department of Public Health (CDPH) regarding current practices and activities related to data de-identification. The DDG Workgroup used the Public Aggregate Reporting for DHCS Business Reports (PAR-DBR) as a starting point for initial drafts. The PAR-DBR had been developed between April and August, 2014 through a workgroup processes within DHCS with input and presentations from OSHPD, CDPH, and University of California, Los Angeles California Health Interview Survey. The PAR-DBR served as a basis for this document, including the literature review conducted as part of the development of the PAR-DBR.

The development process was designed to include an updated literature review, case examples and broad discussion among CHHS programs. Publishing data publicly is always a balance between the protection of confidentiality and the usability of the data.

The project timeline for the CHHS DDG Workgroup is below:

Date	Event
3/15/2015	Planning Meeting Part 1 – Participants included DHCS, CDPH, OSHPD, OHII
3/20/2015	Planning Meeting Part 2 – Participants included DHCS, CDPH, OSHPD, OHII
4/7/2015	Present Objectives for the project and use the DHCS PAR-DBR as an example
4/23/2015	Presentations from OSHPD and CDPH regarding current processes and approach to small cell sizes
5/5/2015	Discuss concept of uniqueness as a way to measure risk for re- identification and gather input from Departments/Offices regarding DDG variables and topics
5/27/2015	Review initial draft DDG – Focus on new sections of the document
6/8/2015	Review initial draft DDG – Focus on Data Assessment for Public Release Procedure
May & June 2015	Meet with each department/office individually
6/30/2015	Review draft DDG version 0.2
July 2015	Departments/offices vet the DDG within their departments/offices 8/21/15
8/6/2015	Review draft DDG version 0.3
8/21/2015	Received input from the CHHS Risk Management Committee
9/14/2015	Progress update for DDG Workgroup and discussion of additional topics
12/18/2015	Presentation from NORC to review their findings of the draft DDG 1/8/16
January 2016	Provide DDG version 0.4 to DDG Workgroup
1/8/2016	Receive final recommendations from NORC
2/18/2016	Review and discussion of draft DDG version 0.4 with the DDG Workgroup
3/18/2016	Provide DDG version 0.5 with outstanding comments from the DDG Workgroup to the Data Subcommittee
4/18/2016	Provide revised draft DDG to the Data Subcommittee.
5/24/2016	Provide draft DDG version 0.7 from the CHHS Data Subcommittee to the CHHS Advisory Council. The Advisory Council shared the DDG version 0.7 with the other subcommittees and discussed the version 0.7 at the 6/8/16 meeting and the version 0.8 at the 7/6/16 meeting.
7/7/2016	Provide draft DDG version 0.10 to the Undersecretary.
9/23/2016	DDG approved by CHHS Undersecretary as Version 1.0.